Epithelial Resources       

Sjögren’s Syndrome 

Here are some patient resource sites for Sjögren’s Syndrome: 

1. Sjögren’s Syndrome Foundation: This is a non-profit organization dedicated to increasing awareness of Sjögren’s Syndrome, providing education and support for patients, and funding research. Their website offers a wealth of information on the condition, including symptoms, diagnosis, treatment, and lifestyle tips. They also have a patient forum where you can connect with others living with Sjögren’s Syndrome. 

2. Sjögren’s Syndrome Support: This is an online support group for patients with Sjögren’s Syndrome. The group provides a safe and supportive environment for people to share their experiences, ask questions, and receive emotional support. They also have a Facebook page where you can connect with other patients. 

3. National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS): This is a government-funded organization that provides information on a wide range of conditions, including Sjögren’s Syndrome. Their website offers information on diagnosis, treatment, and ongoing research into the condition. 

4. American College of Rheumatology: This is a professional organization for rheumatologists, but their website also offers information for patients on a range of conditions, including Sjögren’s Syndrome. Their website offers resources such as patient education materials and a “find a rheumatologist” tool. 

5. Mayo Clinic: This is a non-profit organization that provides healthcare services and conducts medical research. Their website offers information on a wide range of conditions, including Sjögren’s Syndrome. Their website offers resources such as symptoms, causes, diagnosis, treatment, and lifestyle tips. 

6. Arthritis Foundation: This is a non-profit organization dedicated to helping people with arthritis. They have a section on their website dedicated to Sjögren’s Syndrome, which provides information on diagnosis, treatment, and lifestyle tips. They also offer a helpline where you can speak with someone for support and guidance. 

It’s important to note that these resources are not meant to replace the advice of your healthcare provider. Always consult with your doctor if you have any questions or concerns about your health. 

Herpetic Keratopathy 

Herpetic keratopathy is a condition caused by the herpes simplex virus affecting the eye, particularly the cornea. It can lead to complications like corneal scarring and vision loss if left untreated. Here are some reputable patient resource websites where you can find information about herpetic keratopathy: 

1. American Academy of Ophthalmology (AAO): The AAO offers extensive information on eye health and various eye conditions, including herpetic keratopathy. 

2. National Eye Institute (NEI): NEI, part of the U.S. National Institutes of Health, provides reliable information on various eye conditions and related research. 

3. Centers for Disease Control and Prevention (CDC): The CDC offers information on the herpes simplex virus and its effects on the eye, including herpetic keratopathy. 

4. American Optometric Association (AOA): The AOA website has resources on eye health, including information on herpetic keratopathy. 

5. Herpes Viruses Association (HVA): The HVA provides information and support to people affected by herpes viruses, including those with herpetic keratopathy. 

6. The Sight Loss Council: The Sight Loss Council is a UK-based organization that offers support and resources for people with visual impairments, including those caused by herpetic keratopathy. 

7. Prevent Blindness : Prevent Blindness is a US-based nonprofit organization that aims to prevent blindness and preserve sight. They offer information on various eye conditions, including herpetic keratopathy. 

Remember to consult an eye care professional if you suspect you may have herpetic keratopathy or any other eye condition. They can provide appropriate diagnosis and treatment options. 

Neurotrophic Keratitis 

Neurotrophic keratitis is a rare degenerative eye condition that can lead to corneal damage and vision loss. For more information and resources on neurotrophic keratitis, you can visit the following patient resource websites: 

1. National Keratoconus Foundation (NKCF): Although the NKCF primarily focuses on keratoconus, it offers resources and support for individuals with other corneal conditions, including neurotrophic keratitis. 

2. American Academy of Ophthalmology (AAO): The AAO provides comprehensive information on various eye conditions, including neurotrophic keratitis, and offers resources for patients to find an ophthalmologist in their area. 

3. National Organization for Rare Disorders (NORD): NORD is dedicated to helping people with rare diseases, including neurotrophic keratitis, by providing resources, advocacy, and research support. 

4. Cornea Research Foundation of America (CRFA): The CRFA promotes research and education on corneal diseases, including neurotrophic keratitis, and provides resources for patients and their families. 

5. The Dry Eye Foundation: This website focuses on dry eye conditions but also provides information and resources related to neurotrophic keratitis, as it can be a contributing factor to the development of dry eye symptoms. 

Remember to consult your eye care professional for personalized advice and information related to your specific condition.